Our Club Feet Story

April 5, 2008

This is the story of our firstborn with club feet.

My husband Ben and I were married for over 6 years before our first child, Blake, was born. At 18 weeks gestation we went in for a routine sonogram. We sat holding hands, looking at the chambers of the heart, our baby’s face, and his little legs kicking away. When I asked the tech if everything looked okay, she paused. “Well, it looks like your baby may have club feet.” She walked out of the room to show the doctor the print outs and he returned to refer us to a perinatologist at Johns Hopkins Hospital for confirmation. I was a bit surprised, but did not know too much about it, to be upset.

So, of course we went home and googled “club feet.” There is a 1 in 1000 chance that a child could have this genetic disease. It is one of the most common birth defects and can often be treated with casting by orthopedic surgeons, and if necessary, corrective surgeries. Nothing we couldn’t handle right? So, 4 long weeks later, we met with a Hopkins doctor who did over an hour-long sonogram. He looked for signs of other deformities and confirmation of club feet. We were shown both of Blake’s feet and legs. They were clearly “fused” inward. While the rest of his joints were moving normally the entire time, including his knees, his ankle and foot deformity was clear. We were heartbroken for our little one. He would have casting up to his groin with a bar between his legs connecting each cast, along with having to wear special shoes. My mind began to race…Trips to Hopkins. Possible surgeries. No babywearing. No cloth diapers. Odd nursing positions. Pain. Itching. None of these were issues that parents would want for their precious baby, but they were manageable. Then, the perinatologist dropped a bomb… “Club foot is often a marker of neurological problems.” Immediately, I was frozen in fear. He went on to suggest that we go to for genetic counseling and get an amniocentesis. I hung onto his every word, but could not wait to be home in my husband’s arms.

The next day Ben and I prayed and discussed what we wanted to do. We called our parents and siblings and kept it really low key – “Yes, our baby has club feet. He will become a Hopkins patient. Oh, and there may be neurological problems, too.” Oddly, no one seemed to hear that last sentence except my mom. Perhaps it was because we purposefully said it as an afterthought. I am not sure, but we got off the phone quickly with each person so we did not have to verbalize the what-ifs.

We immediately asked for friends and family to pray for our baby’s healing. We visited the head of Hopkins orthopedic surgery unit, Dr. Sponsellor, a few weeks later to discuss treatment options and schedule our baby’s first appointment. That consultation went well. The awful part was waiting for 2 hours to be seen and watching child after child come and go. Some were in wheelchairs. Others had leg braces, or major birth defects. As I felt our son kick inside me, I grieved for what the future might hold.

We never went for the counseling or amnio. We had no plans to terminate the pregnancy, so we decided not to bother putting ourselves through more painful appointments. The rest of the pregnancy was wonderful. We anticipated our baby’s arrival with joy, believing that God would do whatever would bring Him glory in the end. We were at peace, despite occasional flickers of fear here and there. We bought lots of newborn gowns in anticipation of casting, not because we didn’t have faith that God wouldn’t heal our baby, but because we believed that He still could be glorified through our trial and we ought to prepare ourselves for it.

Our baby was born on December 3, 2006 after 27 long hours in labor. When they handed him to me, I looked at his face, without thought of his feet. It wasn’t until hours later that my husband and I discussed that Blake did not appear to have club feet from the glimpse we got before he was swaddled. When the hospital pediatrician came by we asked him how Blake’s feet looked. Not knowing our history, he looked puzzled, and said, “Just fine, why?” Ben and I looked at each other and smiled. That’s when I knew. Not only did we bring our first child into the world, but The Great Physician healed him.

We kept our scheduled appointment at Hopkins with Dr. Sponseller to be sure there wasn’t something we were overlooking. After asking us a few questions, Dr. Sponseller showed his two doctors in residence how our two week old had full mobility in his ankles. He looked right at us and stated that it wasn’t even a mild case of club feet. He plainly did not have the deformity.

Several months later, I went to the hospital to visit a friend who had just had a baby. On our way to the maternity ward, Blake and I passed the perinatologist room where we received confirmation of Blake’s club feet diagnosis and potential neurological problems. I looked at him and we suddenly seemed to walk in slow motion. I was carrying my healthy baby on my hip, his legs across my stomach and back, and he was smiling at me. I began to praise God with tears in my eyes and a spring in my step. I would like to say I would have had that same spring in my step had God willed otherwise, but there’s no way to know, for He answered the pleas of this servant. He healed our son.

Oh, and…”Just so we wouldn’t forget,” my dad said, “God left His calling card” on Blake’s left foot. One of Blake’s toes crosses over the other in the direction that his entire foot was originally turned. Coincidence? Maybe. Or maybe not.

4 Responses to “Our Club Feet Story”

  1. Jenny Says:

    Lisa,
    Thanks for that story! It speaks to the faith and trust you and Ben have in God. The power of prayer is just amazing! I love to hear about the blessings that God gives us.

  2. Megan Says:

    Hi Lisa,
    We were just told yesterday that our baby has club feet (at our 18 week sonogram). Didn’t seem like a big deal until I’m reading about other neurological conditions. I’m kinda freaked out - but your story helped. My husband and I continually say that this is ‘not in our hands.’ I pray that our story turns out like your family’s. . . . but, again, that is not in our hands.

    Thanks for sharing,
    Megan

  3. Victoria Withrow Says:

    My son was born 14 years ago with severe bilaterial club feet. I remember the fear and uncertainy I went through after his birth and during his surgeries. I am so happy to say that he is doing amazing. He runs as fast as his peers, won the MVP basketball award for entire league he plays in, and just made his freshman high school football team. As an infant he was casted and underwent a few surgeries. I highly recommend every parent of a child with club feet find a great physical therapist that will work with your child weekly. Although my sons shinns are thinner then the average, and he has some stiffness in his ankles, he has found ways to make it work for him. He is a very gifted athlete and very few people even realize that he has club feet. He has no limitations. The power of pray is amazing….. keep praying. Your children’s accomplishments will amaze you!

  4. Tami Says:

    Thank you for sharing your story. We found out last week that the ultrasound is showing our baby girl has clubfeet. This was not the worst of the news, my blood work showed a chance of downs syndrome. I went ahead and had the amnio and she does not have downs. She does have ventricularmegaly and clubfeet. God gave me peace to know that whatever He gives our little girl He will give us what we need to care for her and love her. I have felt like there is nothing wrong with asking Him to heal her in my womb, if it is His will. Your story is such a gift and confirmation that it IS okay to pray this way. I really am okay with her having challenges, but I would love for her to be able to breastfeed and sleep comfortably at night. The treatment for clubfeet is not conducive to comfy sleep.
    Thank you so much for sharing your story. It is such an encouragement to me. I emailed it to my husband, who is out of town and my family. God is so great to give me so many faith-filled praying friends.
    To God be the glory!

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